Support research. Find a cure. Help children and families fight rare diseases.
Help support research to expedite the development of treatments for rare and ultra-rare childhood neuromuscular diseases.
WHO WE ARE
PETER & MAGGIE WERE BOTH BORN WITH 10 PERFECT FINGERS AND 10 PERFECT TOES. THEY WERE BOTH DISCHARGED HOME FROM THE HOSPITAL WITH A CLEAN BILL OF HEALTH AND HIT ALL THEIR DEVELOPMENT MILESTONES…
NINE YEARS LATER, EVERYTHING CHANGED WHEN PETER & MAGGIE WERE BE DIAGNOSED WITH A RARE FORM OF MUSCULAR DYSTROPHY LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2C (SARCOGLYCANOPATHY)
A RAPIDLY PROGRESSIVE MUSCLE WASTING DISEASE, CAUSED BY GENETIC MUTATIONS. WITH NO CURE.
THUS, THE DION FOUNDATION WAS ESTABLISHED. TO RAISE AWARENESS, FUND RESEARCH AND FIND A TREATMENT FOR THIS FATAL DISEASE.
rare without a cure.
what is sarcoglycanopathy?
LIMB GIRDLE MUSCULAR DYSTROPHY TYPES 2C, 2D, 2E, 2F
AGGRESSIVE FORM OF CHILDHOOD MUSCULAR DYSTROPHY
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