Mission Statement

Our mission at the Dion Foundation is to increase awareness of rare and ultra-rare genetic diseases that affect children, such as Limb-Girdle Muscular Dystrophy, with the intention of allocating funds for research and development of potential treatments and cures of these devastating diseases. Our belief at the Dion Foundation is that no child should be left behind. Our children matter, and so do the lives of so many other children affected by rare genetic neuromuscular diseases.