We’re the Baileys — Brian and Chrissy — and our three amazing children: Colton (10), Kennedy (8), and Berkeley (6).
We live in the beautiful Seacoast region of New Hampshire, right where Maine, Massachusetts, and New Hampshire meet. It’s a place we love, with easy access to the ocean, lakes, mountains, and so much more. Life stays full with soccer, dance, school, work, and our increasing efforts with the foundation.
In the summer of 2025, both of our daughters were diagnosed with LGMD (Limb-Girdle Muscular Dystrophy) type 2C. We immediately took action, determined to do everything we could to fight this progressive disease. The Dion Foundation gave us a home — a place where we could raise awareness and critical funding for research, treatments, and hope — not just for our girls, but for all families facing LGMD.
We invite you to join us: donate, volunteer, and follow the girls' journey on social media (@walkonlgmd). Your support means the world to us — thank you.
Kennedy is our middle child, and true to form, she is the sweet, gentle peacekeeper of our home. She has a heart for everyone — every person and animal she meets — and she gets her energy from being surrounded by her friends and family.
Kennedy is very artistic and has always found joy in creating — whether it’s through art, music, or dance. She’s currently in her third year on a local dance team, where she continues to express herself through movement and performance. Dance has always been one of her favorite things, and although it’s becoming slightly more challenging, she still shines on stage with grace, passion, and determination.
Kennedy was diagnosed with LGMD after her younger sister began the testing process. As we looked more closely at Kennedy’s development, subtle symptoms began to make sense. Since her diagnosis, she has faced every step of this journey with incredible strength and resilience - a true warrior.
When she was little, Kennedy used to say, “Watch me, Mama!” — and she’s been showing us what she’s capable of ever since. She’s talented, brave, and full of heart — and we are endlessly proud to call her ours.
As the youngest of three, Berkeley is definitely our wild child. She is full of fire and spirit — always keeping us on our toes and challenging us in ways her siblings never did. But along with that fire and fierce independence comes an incredibly loving, joyful, and hilarious little girl. Her laughter is contagious, and she has a magical way of lighting up every room she enters. She loves to make people laugh, and will do almost anything to make it happen.
Berkeley loves doing whatever her siblings are doing — from playing soccer like her big brother to joining the dance team like her sister. She's very social and thrives when she’s surrounded by her friends or performing for a group of adults. She’s also endlessly creative and is constantly coming up with stories, mischievous activities, and games to keep herself occupied.
Berkeley was diagnosed with LGMD2C at the age of six, after experiencing persistent leg pain. While she lives with daily discomfort, most people would never know — because what they see is the spark, the joy, and the unstoppable light that shines from within her.
