Age 11.
Charlotte was diagnosed with LGMD2C at 2.5 after experiencing a complication called non-traumatic rhabdomyolysis. A virus triggered a massive die off of muscle that required hospital admission to protect her kidneys.
Charlotte is an incredibly kind and gentle child, who just wants to help anyone (animals included) that she can. When she sees someone that needs help, she is overcome with a desire to give. We are fighting for her because more kindness needs to exist in the world - she’s a bright light who deserves the brightest possible future.
She, as all kids do, deserve whatever future they can imagine and work towards.
Age 12.
Peter was diagnosed with LGMD2C in 2022 at the age of 9.
Peter loves all things boating, fishing. and this year he has been busy with his lobster traps in the waters of Cape Cod.
Everything he loves to do, is more of a challenge these days due to his muscular dystrophy. Keeping up with friends is a challenge, but one Peter does with grace.
Despite the daily struggles of living with LGMD2C, Peter is always smiling. He is happy, caring and kind. Peter is the friend who includes everyone.
Peter wants to go to the University of Florida (GO GATORS!) and study engineering, to hopefully some day build a US aircraft carrier.
Age 9.
Maggie was diagnosed with LGMD2C at the age of 6, after her big brother was diagnosed.
Maggie is a “light up the room” kind of girl. She is outgoing, funny, caring, charismatic and a natural charmer, being the youngest of her family. She loves to dance and perform.
Maggie is a caregiver, loves with her whole heart, and always sees the best in people.
She is incredibly brave when she has to face hard things over the last 3 years since her diagnosis.
Maggie wants to be a model when she grows up, and her dream is to travel to Bora Bora and own a yacht - Go, girl!
Follow @thedionfoundation on Instagram to see some of Maggie’s videos!